Patient Video - What resources do you find useful for managing your FCS?
Charles talks about the resources he finds helpful for understanding and managing FCS. He recommends the
FCS Foundation website
as a great resource for someone newly diagnosed. He uses the Living with FCS Facebook group to connect to other persons with FCS. Charles also recommends the
National Pancreas Foundation websites
which provide a wealth of information on diseases of the pancreas and FCS, including a library of
animations, videos, and patient interviews that share relatable experiences.
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Patient Videos
1.
When did you find out you had FCS? How was it diagnosed?
2.
Do any of your family members have FCS?
3.
How often do you see your doctor about FCS? What do you discuss?
4.
What foods and diets do you avoid for your FCS?
5.
What self-management and lifestyle practices do you follow for FCS?
6.
Do you exercise as part of your routine for managing FCS?
7.
What are the biggest challenges you face living with FCS?
8.
What resources do you find useful for managing your FCS?
