Patient Video - When did you find out you had Familial Chylomicronemia Syndrome (FCS)? How was it diagnosed?
Charles describes the long and uncertain process he went through leading up to his diagnosis of Familial Chylomicronemia Syndrome (FCS). After an attack of acute pancreatitis over a decade ago, he spent years in and out of the hospital due to pancreatitis. Blood tests revealed he had high triglyceride levels, but his condition remained undiagnosed. Despite strict diet changes and other efforts to stay healthy, his triglyceride levels remained abnormally high. During a more recent hospital visit, a different blood test was ordered and his diagnosis of FCS was confirmed.
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Patient Videos
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When did you find out you had FCS? How was it diagnosed?
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Do any of your family members have FCS?
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How often do you see your doctor about FCS? What do you discuss?
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What foods and diets do you avoid for your FCS?
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What self-management and lifestyle practices do you follow for FCS?
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Do you exercise as part of your routine for managing FCS?
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What are the biggest challenges you face living with FCS?
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What resources do you find useful for managing your FCS?
