Patient Video - What are the biggest challenges you face living with FCS?
Charles shares his challenges of living with FCS,including following a restrictive diet, the feeling of being a burden to caregivers, the financial burden of having such a rare disease, and the uncertainty and fear of not knowing when another attack of pancreatitis might happen. Despite these challenges, Charles says that receiving support from caregivers and others with FCS has been very encouraging. He describes how his quality of life has improved because of his primary health plan and research study participation.
Click here to take our SURVEY
Your feedback is important to us! We will use your feedback to develop future areas of content about pancreatic diseases which will help other patients, caregivers and families.
Patient Videos
1.
When did you find out you had FCS? How was it diagnosed?
2.
Do any of your family members have FCS?
3.
How often do you see your doctor about FCS? What do you discuss?
4.
What foods and diets do you avoid for your FCS?
5.
What self-management and lifestyle practices do you follow for FCS?
6.
Do you exercise as part of your routine for managing FCS?
7.
What are the biggest challenges you face living with FCS?
8.
What resources do you find useful for managing your FCS?
