Patient Video - What self-management and lifestyle practices do you follow for your FCS?

Charles describes some of the ways he manages the physical and emotional aspects of living with Familial Chylomicronemia Syndrome (FCS).  He felt lonely and emotionally-detached when he was first diagnosed. By changing his mindset and staying connected with other people with FCS, he felt encouraged to move forward and do better. Online resources and the FCS patient communities on social media have helped him overcome some of the isolating aspects of his condition. Charles also talks about adopting a disciplined approach to diet and physical activity to stay as healthy as possible. Lastly, he recommends speaking with your doctor about participating in clinical trials.

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